Living with CKD

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Ok, so I'm not feeling so hot again. My stomach hurts and I feel really tired. I'm feeling really weak and without any energy. Damnit, I have so much to do today I don't have time to be sick.

Food Poisioning?


Ugh. Last night was awful. I was fine all day yesterday, even in the evening when Eric came over to borrow my car and hung out with me for awhile, I was fine. I was fine when I ate a bowl of cereal for dinner and fine when I went to bed at 11 PM. But by 12:30 I *was not* fine at all. I woke up and was up until 6 AM throwing up, having watery diarrhea and horrible stomach pains. Additionally, I started having muscle cramps in my legs after a very short time because I got waaaay too dehydrated. Ken had decided earlier in the day to stay at his house because he was up pretty late gaming with some friends, so I was all on my own. I called him at 2:30 AM because I was feeling miserable and then again at 5:00 because I felt worse. I started getting scared that I would get up to go to the bathroom and then pass out and no one would be here. I felt sooo bad asking him to come over, but I really didn't feel safe by myself and with Alek, too. He came over and I finally was able to go to sleep (even though I was still waking up every hour or so with leg cramps). I ended up sleeping most of today - I put Alek in his room with the baby gate across the door, gave him a sippy and some snacks and left the baby monitor on just in case. He was pretty happy playing by himself for awhile, and I did manage to get up twice for about an hour each time to feed him breakfast and lunch, but I felt bad for him having to be all by himself all day. By the late afternoon he was crying and just sitting on his bed looking pretty sad and forgotten - which made me cry, too, and feel guilty - but I snuggled him for an extra long time and he seems better now. The whole experience really wore me out so now all I need is a little food in my system and a lot of water. I think sleeping helped, too. I'm not sure why all this happened. The only thing I can think of is food poisoning - all I had to eat yesterday was spaghetti from the cafe below my work (I love their spaghetti and eat it often, never had a problem before...) and a bowl of cereal for dinner. It couldn't have been the milk from the cereal, because Alek's been drinking it and he's perfectly fine. I feel much better now. Sort of weak and pathetic, but I think I'll live. :)

Kidney Disease - FSGS

Focal segmental glomerulosclerosis (FSGS) describes scarring in scattered regions of the kidney, typically limited to one part of the glomerulus and to a minority of glomeruli in the affected region. FSGS may result from a systemic disorder or it may develop as an idiopathic kidney disease, without a known cause. Proteinuria is the most common symptom of FSGS, but, since proteinuria is associated with several other kidney conditions, the doctor cannot diagnose FSGS on the basis of proteinuria alone. Biopsy may confirm the presence of glomerular scarring if the tissue is taken from the affected section of the kidney. But finding the affected section is a matter of chance, especially early in the disease process, when lesions may be scattered. Confirming a diagnosis of FSGS may require repeat kidney biopsies. Arriving at a diagnosis of idiopathic FSGS requires the identification of focal scarring and the elimination of possible systemic causes such as diabetes or an immune response to infection. Since idiopathic FSGS is, by definition, of unknown cause, it is difficult to treat. No universal remedy has been found, and most patients with FSGS progress to ESRD over 5 to 20 years. Some patients with an aggressive form of FSGS proceed to ESRD in 2 to 3 years. Treatments involving steroids or other immunosuppressive drugs appear to help some patients by decreasing proteinuria and improving kidney function. But these treatments are beneficial only to a minority of those in whom they are tried, and some patients experience even poorer kidney function as a result of therapy. ACE inhibitors may also be used in FSGS to decrease proteinuria. Treatment should focus on controlling blood pressure and blood cholesterol levels, factors that may contribute to kidney scarring.

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